Welcome

to the Swiss Huntington Association

The Swiss Huntington Association (SHV) is a non-profit organisation dedicated to improving the lives of all those affected by Huntington’s Disease (HD). The association has over 300 members in Switzerland, and new members are always warmly welcome. By sharing information and expertise, we aim to provide encouragement, comfort and practical guidance for those who are living with HD or at risk of HD, as well as their loved ones and carers. The association holds regular social gatherings and lectures. Regional self-help groups provide local support for affected persons and their relatives.

Obituary Heidi Brunold-Sturzenegger 10/6/1932 – 9/27/2022

Heidi Brunold left us shortly before her 90th birthday. She was cofounder of the Swiss Huntington Association. Her daughter, Regula, was the association’s first president.

Heidi was not spared from strokes of fate. First her son died of Huntington’s Disease, then her husband and many years later her daughter Regula died in September 2015 at the age of around 51. Her entire family fell victim to Huntington’s Disease. Rarely have I met such a strong person as Heidi was. She had never complained. She took part in almost all meetings of the association.

When her son and husband fell ill, Huntington’s Disease was still almost unknown in Switzerland. Heidi primarily informed herself in Germany. She felt that families in Switzerland also needed support. In 1989 she founded the Swiss Huntington Association in Winterthur, together with other members and Peter Müller, at that time director of Pro Infirmis Winterthur. Since she lived in Rorschacherberg, the association’s headquarters can still be found at this location. After Rorschacherberg, Heidi moved to Peist in the canton of Graubünden. She spent the rest of her life in Chur in a nursing home. I will always keep good memories of this strong and kind person.

Rest in peace dear Heidi!
October 2022, Walter Bucher

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