You are not alone

There are self-help groups in Basel, Bern, Romandie and Zurich.
Self-help groups let you meet in a small group situation and talk to people who understand what you’re going through.  Participants provide  mutual emotional support and share practical tips and information on a range of issues.  Talking to people who are in a similar situation can help you clarify your own feelings about HD and its affect on you and your family.
There is an excellent global organisation specifically for children and young adults from HD families.  It’s called HDYO (Huntington’s Disease Youth Organisation).   If you are looking for good, understandable and age-appropriate information, we recommend you visit their site – HDYO